Cross-sectoral ethics arrangements for health and disability research - consultation

Please note: This consultation closed on Friday 27 February 2015.

The National Ethics Advisory Committee (NEAC) is seeking your feedback on the current health and disability research ethics arrangements, issues with these arrangements and ideas for enhancing them.

This work covers the responsibility for ethical health and disability research and the standards, processes and structures that support this responsibility.

NEAC’s discussion document outlines issues across six areas, discusses current and other possible responses to these issues, and asks questions for feedback. The issues relate to:

  • the complex research ethics landscape
  • Māori and health research
  • alternative ethical review structures
  • peer review for scientific validity
  • audit and audit-related activity
  • innovative practice.

Some of these issues relate to the 2012 changes to the Health and Disability Ethics Committees. NEAC’s interest in the HDEC changes is as part of the wider context of cross-sectoral ethics arrangements. Our work is not intended as a review of those changes.

We are seeking feedback by Friday 27 February 2015.

Following the consultation process, NEAC will prepare advice and recommendations to the Associate Minister of Health on how to address the current issues. Your feedback will also inform NEAC’s 2015 review of its Ethical Guidelines for Observational Studies and Ethical Guidelines for Intervention Studies.

How to have your say

To take part, please download the submission form (docx, 86 KB), complete it electronically and send by email to [email protected], or post a printed copy to us:

National Ethics Advisory Committee Secretariat
PO Box 5013
Wellington 6145

If you have any questions, please contact us by email at [email protected].

Publishing information

  • Date of publication
    05 January 2015
  • Ordering Information:
    Only soft copy available to download